Why did it come as a surprise? Well, you see, I’m female in every sense of the word, and so are all other girls and women with Turner Syndrome. We either have a 45 X or 45 X with part of the other X chromosome (mosiac) karyotype rather than the “normal” 46 XX female karyotype. There is no Y to be found (Y determines the sex of a baby). All patients with Turner Syndrome are female. Yes, there are conditions similar to Turner Syndrome that affect males, but there is always at least a partial Y chromosome involved. That is why the label “intersexed” confuses me when it comes to Turner Syndrome.
It might not mean much, but when you are a teenager dealing with Turner Syndrome (and I plan on discussing this particular topic much more in the days and weeks to come), you already question whether or not you are a “real” woman due to the fact that most women with Turner Syndrome are infertile. My experience growing up with Turner Syndrome and my understanding of the perceived gender issues that it entails lends me to question why it is labeled as “intersexed” at all. Intellectually, I understand that any variation of the 46 XX or the 46 XY norm is labeled as “intersexed,” but as a woman who has lived with an “intersexed” condition, I question why the medical community has to split hairs in this case. I find it unsettling.
The article below is thought-provoking. In my post I didn’t even address how the intersex movement is being co-opted by the transgendered movement. Quite frankly, I don’t need to right now. The author of the article below, who has an intersexed condition herself, does it well.
Lindsey
As someone who also only recently found out that some people are calling TS an ‘intersex’ condition, I’m with you. Not only puzzled, but really kind of offended. I am female, as is every other woman I know with TS. It’s bad enough having my doctor (who I really do love, but she occasionally blew me away when I first starting seeing her) say, “You know, you’ve really changed my mind about TS.” She had also been under the impression that women with TS were mentally retarded. This bothers me even more than that– almost as much as the ‘professor’ in the graduate level Child Development class who called girls/women with TS ‘creatures.’ ::SIGH::
You are SO right about the questioning whether you are a ‘real’ woman, and it does NOT make it any easier to be told that you really aren’t even FEMALE. Particularly for those of us who are mosaic or who are not 45X but who have one partially missing or partially repeated X chromosome… as you stated, no confusion about genitalia, no confusion about chromosomal gender. But a LOT of possible gender identification issues when you’re told you’re NOT what you ARE. I really honestly don’t think TS meets the definition of an intersex condition, and we are all most assuredly females!
Actorgirl, thank you so very much for commenting. I couldn’t agree with you more. It seems to me that the most likely people to treat us (Turners women) as anything other than the women that we are are in fact doctors. It seems as though all too often doctors can’t get past the diagnosis to see that a human being is there right in front of their eyes.
How on Earth anyone could characterize Turners women as retarded is beyond me. Quite frankly, I don’t know any Turners women who haven’t at least earned a bachelors degree. I say that because it means that despite the fact that some may have learning disabilities, they are more than capable of managing the educational system.
Lindsey